Obstacles and expectations of rare disease patients and their families in Turkiye: ISTisNA project survey results - Ng, Ozden Hatirnaz; Sahin, Ilayda; Erbilgin, Yucel; Ozdemir, Ozkan; Yucesan, Emrah; Erturk, Nazli; Yemenici, Merve; Dogan, Ozlem Akgun; Iseri, Sibel Aylin Ugur; Satman, Ilhan; Alanay, Yasemin; Ozbek, Ugur (FRONTIERS MEDIA SA, 2023)
Keywords: rare disease; survey; Turkiye; ISTisNA; patient expectations