Real-world evidence in achondroplasia: considerations for a standardized data set

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dc.contributor.authorAlanay, Yasemin
dc.contributor.authorMohnike, Klaus
dc.contributor.authorNilsson, Ola
dc.contributor.authorAlves, Ines
dc.contributor.authorAlSayed, Moeenaldeen
dc.contributor.authorAppelman\\-Dijkstra, Natasha M.
dc.contributor.authorBaujat, Genevieve
dc.contributor.authorBen\\-Omran, Tawfeg
dc.contributor.authorBreyer, Sandra
dc.contributor.authorCormier\\-Daire, Valerie
dc.contributor.authorGregersen, Pernille Axel
dc.contributor.authorGuillen\\-Navarro, Encarna
dc.contributor.authorHoegler, Wolfgang
dc.contributor.authorMaghnie, Mohamad
dc.contributor.authorMukherjee, Swati
dc.contributor.authorCohen, Shelda
dc.contributor.authorPimenta, Jeanne
dc.contributor.authorSelicorni, Angelo
dc.contributor.authorSemler, J. Oliver
dc.contributor.authorSigaudy, Sabine
dc.contributor.authorPopkov, Dmitry
dc.contributor.authorSabir, Ian
dc.contributor.authorNoval, Susana
dc.contributor.authorSessa, Marco
dc.contributor.authorIrving, Melita
dc.date.accessioned2025-10-16T15:15:03Z
dc.date.issued2023
dc.identifier.doi10.1186/s13023-023-02755-w
dc.identifier.otherWOS:001016781800002
dc.identifier.urihttps://openaccess.acibadem.edu.tr/handle/11443/6358
dc.publisherBMC
dc.sourceORPHANET JOURNAL OF RARE DISEASES
dc.subjectAchondroplasia
dc.subjectRegistry
dc.subjectReal\\-world data
dc.subjectReal\\-world evidence
dc.subjectGrowth
dc.subjectQuality of life
dc.subjectRare disease
dc.titleReal-world evidence in achondroplasia: considerations for a standardized data set
dc.typeArticle

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