Obstacles and expectations of rare disease patients and their families in Turkiye: ISTisNA project survey results

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dc.contributor.authorNg, Ozden Hatirnaz
dc.contributor.authorSahin, Ilayda
dc.contributor.authorErbilgin, Yucel
dc.contributor.authorOzdemir, Ozkan
dc.contributor.authorYucesan, Emrah
dc.contributor.authorErturk, Nazli
dc.contributor.authorYemenici, Merve
dc.contributor.authorDogan, Ozlem Akgun
dc.contributor.authorIseri, Sibel Aylin Ugur
dc.contributor.authorSatman, Ilhan
dc.contributor.authorAlanay, Yasemin
dc.contributor.authorOzbek, Ugur
dc.date.accessioned2025-10-16T15:16:04Z
dc.date.issued2023
dc.identifier.doi10.3389/fpubh.2022.1049349
dc.identifier.otherWOS:000950203000001
dc.identifier.urihttps://openaccess.acibadem.edu.tr/handle/11443/6611
dc.publisherFRONTIERS MEDIA SA
dc.sourceFRONTIERS IN PUBLIC HEALTH
dc.subjectrare disease
dc.subjectsurvey
dc.subjectTurkiye
dc.subjectISTisNA
dc.subjectpatient expectations
dc.titleObstacles and expectations of rare disease patients and their families in Turkiye: ISTisNA project survey results
dc.typeArticle

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