Real-world evidence in achondroplasia: considerations for a standardized data set

Tarih

Yazarlar

Alanay, Yasemin

AlSayed, Moeenaldeen

Appelman\\-Dijkstra, Natasha M.

Baujat, Genevieve

Ben\\-Omran, Tawfeg

Cormier\\-Daire, Valerie

DOI No

10.1186/s13023-023-02755-w

Diğer Tanımlayıcı No

WOS:001016781800002

Yayınevi

Anahtar kelimeler

Achondroplasia, Registry, Real\\-world data, Real\\-world evidence, Growth, Quality of life, Rare disease

URI

https://openaccess.acibadem.edu.tr/handle/11443/6358

Koleksiyonlar

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