Obstacles and expectations of rare disease patients and their families in Turkiye: ISTisNA project survey results

Ng, Ozden Hatirnaz; Sahin, Ilayda; Erbilgin, Yucel; Ozdemir, Ozkan; Yucesan, Emrah; Erturk, Nazli; Yemenici, Merve; Dogan, Ozlem Akgun; Iseri, Sibel Aylin Ugur; Satman, Ilhan; Alanay, Yasemin; Ozbek, Ugur

doi:10.3389/fpubh.2022.1049349

Obstacles and expectations of rare disease patients and their families in Turkiye: ISTisNA project survey results

Files

Obstacles and expectations of rare disease patients and their families in Turkiye ISTisNA project survey results.pdf (745.62 KB)

Date

2023

Authors

Iseri, Sibel Aylin Ugur

Satman, Ilhan

dc.identifier.doi

10.3389/fpubh.2022.1049349

dc.identifier.other

WOS:000950203000001

Publisher

FRONTIERS MEDIA SA

DOI

10.3389/fpubh.2022.1049349

Keywords

rare disease , survey , Turkiye , ISTisNA , patient expectations

URI

https://openaccess.acibadem.edu.tr/handle/11443/6611

Collections

WOS

Full item page

Obstacles and expectations of rare disease patients and their families in Turkiye: ISTisNA project survey results

Files

Date

Authors

Journal Title

Journal ISSN

Volume Title

dc.identifier.issn

dc.identifier.doi

dc.identifier.other

dc.description.volume

dc.description.issue

Publisher

DOI

Abstract

Description

Keywords

Citation

URI

Collections

Endorsement

Review

Supplemented By

Referenced By